We realise most visitors to this site will be looking for information related to kidney disease. There are a number of kidney charities and other support organisations in the UK, each offering slightly different things, some of which are detailed below.
Additionally, we also provide signposting to organisations dealing with a range of other issues that young people with CKD may also be facing.
Please note that at this time we can only signpost to organisations based in the UK, and at no point should anything listed here be viewed as a substitute for advice from a medical professional.
In a medical emergency, please phone 999.
If you need crisis support, please contact Samaritans; they are free to call on 116 123.
Kidney Care UK
Whether you’re newly diagnosed or a long term kidney patient Kidney Care UK have lots of information on all aspects of kidney health including over 65 leaflets covering topics such as dialysis, transplants, employment, sexual health, contraception, diet and lifestyle.
Kidney Care UK can offer you support through patient financial grants, respite breaks, telephone counselling, advocacy service and welfare and benefits health check.
Coronavirus (Covid-19) Guidance
For the latest and up to date information.
Over 80 kidney-friendly recipes that will fit into the eating plans given to you by your dietitian including ideas of everyday and special occasion dishes. With tips to save money, eat healthier and options for those following a vegan or vegetarian diet, each recipe also includes the carbohydrate values for those trained in insulin adjustment.
Loads of exciting challenges to choose from in 2021 or organise your own fundraising activity to help kidney patients and their families.
Kidney Research UK
Dialysis Decision Aid
A booklet to help you think about the right type of dialysis for you.
A-Z of kidney conditions and symptoms
Information about various types of chronic kidney disease and how they may affect you.
Managing your medications
Guidance to help you keep track of your medications and get support to help you stay well.
Understanding test results
Guidance on how to interpret your blood test results, and information to help you understand why various tests might be necessary.
Resources on a wide variety of topics, specifically tailored for people under 25.
Shout 85258 is a free, confidential, anonymous text support service. You can text from wherever you are in the UK.
Call 116 123 for free mental health support, 24 hours a day, 365 days a year.
Advice and support for anyone experiencing a mental health problem. Mind campaigns improve services, raise awareness and promote understanding.
Mental Health Foundation
The UK’s leading mental health charity, providing information about mental health and how to look after yours.
Advice and support for people living with anxiety.
Be More Us
Campaign to End Loneliness – combatting loneliness and isolation
Honest advice about contraception, pregnancy, STIs and pleasure.
Free and confidential sexual health and wellbeing advice.
Advice for all types of relationships. Signposting to counselling services in regional areas.
Free information and support to help combat domestic abuse.